If you are an Alpha, or a family member, looking for a community of supportive Alphas, please join our Facebook group: https://www.facebook.com/groups/A1ADSupport/
You can also follow us on our public Facebook page: https://www.facebook.com/A1ADSupport/ (If you need to contact us, this is the best place to do it. Message us here.)
Testing
- Alpha-1 Coded Testing – Alpha-1 at MUSC
Genetic Counseling Program
- Genetic Counseling Program – Alpha-1 at MUSC
Research
- Research Registry – Alpha-1 at MUSC
Specialized Groups
- Alphas with Rare Genotypes – This group shares information, resources, and experience for those whos genotype is something other than ZZ, MZ, SZ, or MS.
- Alpha-1 Kids – Parent Support Facebook group – Are you a parent of an Alpha Kid? Come join the group to get specialized information and support with a focus on accuracy and easy to understand language that can really help on the Alpha-1 journey.
- Alpha-1 UK Support Group – If you live in the UK, this group is a fabulous resource for information on finding a specialist, understanding the medical system, and figuring out financial concerns.
- Alpha-1 Support Group Canada – A small group of Canadian Alphas with experience finding great respirologists, applying for augmentation therapy, etc.
Specialists
- Find an Alpha-1 Specialist – Alpha-1 Foundation
Patient Assistance Programs
- Patient Assistance Programs – Alpha-1 Foundation (
US only)