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Contacts

If you are an Alpha, or a family member, looking for a community of supportive Alphas, please join our Facebook group: https://www.facebook.com/groups/A1ADSupport/

You can also follow us on our public Facebook page: https://www.facebook.com/A1ADSupport/ (If you need to contact us, this is the best place to do it. Message us here.)

Testing

Genetic Counseling Program

Research

Specialized Groups

  • Alphas with Rare Genotypes – This group shares information, resources, and experience for those whos genotype is something other than ZZ, MZ, SZ, or MS.
  • Alpha-1 Kids – Parent Support Facebook group – Are you a parent of an Alpha Kid? Come join the group to get specialized information and support with a focus on accuracy and easy to understand language that can really help on the Alpha-1 journey.
  • Alpha-1 UK Support Group – If you live in the UK, this group is a fabulous resource for information on finding a specialist, understanding the medical system, and figuring out financial concerns.
  • Alpha-1 Support Group Canada – A small group of Canadian Alphas with experience finding great respirologists, applying for augmentation therapy, etc.

Specialists

Patient Assistance Programs