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How can I get tested for Alpha-1?

Alpha-1 can be detected by a simple blood test. Your primary care physician can order this test for you. In addition, the Alpha-1 Foundation can provide a free fingerstick Alpha-1 Test Kit to physicians upon request. These tests are mailed to the University of Florida Alpha-1 Research Program for testing. Results are generally available within two to four weeks.

Individuals may also choose to be tested on a confidential basis through the Alpha-1 Foundation’s Alpha-1 Coded Testing (ACT) Trial. This trial offers free and confidential fingerstick testing for Alpha-1. The test is administered through a research study that evaluates the risks and benefits associated with receiving genetic information test results. Anyone can request to be tested. Participants or the participant’s guardian will be asked to complete a short questionnaire before and after testing. This program, established by the Alpha-1 Foundation, is headquartered at the Research Registry Coordinating Center at the Medical University of South Carolina in Charleston.

Big Fat Reference Guide – AlphaNet